My name is Angie and I suffer with
CVS. I've had CVS for since I was 14 years old which is 22
years, I was diagnosed in 2008. I was sitting at home on one day thinking what
I can do to help people with CVS (even when I'm stuck at home unwell)
and Facebook was the answer.
I started a Facebook group called
‘Cyclic Vomiting Syndrome (CVS) Support Group’ with the intention of using it
for supporting people with CVS, adding CVS information and raising awareness.
The group really took off and soon we had hundreds of members from all over the
world. The members love the group and are so happy to find people who can
relate to what they or their loved one has. We talk about all kinds of subjects
like symptoms, medication, feelings, medical staff, hospital visits, raising
awareness and lots more. We also offer support to each other when times are
rough which has proved valuable to many members. We share stories of sadness
and joy and we help one and other daily it’s amazing. I'm also an
administrator of the Facebook sister page called ‘Cyclic Vomiting
Syndrome’ which has over 1000 likes from people worldwide. This is an information
page where I add information, news article links, stories, posters and lots
more.
Being an administrator of a large
group can be challenging sometimes but it is such a pleasure to do. I can help
people like myself that suffer with CVS even when I can’t leave the house and
that’s a blessing because I still feel like I'm doing something
even when I'm stuck in bed. I try to add things to the group and
page when I'm well enough to and try to log on daily to add
members and check posts, but sometimes this can be hard to do
when I'm unwell almost daily.
I make a lot of CVS posters for our
group and page if you search the
web I'm sure you'll find some of them.
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by Colleen Rice)
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