Hi my name is Angie I'm 37 and I've suffered with a rare illness called Cyclic Vomiting Syndrome (CVS) for 23 years. I have had CVS since I was 14 years old and it's very hard to live with. My CVS episodes can last for hours or days and I can vomit up to 10 times an hour. Episodes tend to start at the same time of day which is morning or late evening for me, the symptoms and level of intensity in attacks can vary. I get daily symptoms of pain, nausea and anxiety which cause me to miss out on a lot of things with my family and friends. I get a lot of migraines and abdominal migraines. My full CVS attacks can come at any time without warning, mine usually come every 1-2 weeks. Sometimes attacks are so bad that I have to be taken to hospital for medication and fluids. I take a lot of medication daily to help fight the symptoms and abort attacks but still I struggle with this every day and so do many more like me.
Symptoms of CVS are
⦁ Severe and constant, unremitting nausea
⦁ Onset of vomiting is most commonly during the night or early morning
⦁ Repeated vomiting, peaking at up to 5-6 times per hour
⦁ Retching, often violently
⦁ Pallor, often extreme paleness of the skin
⦁ Headache
⦁ Intense abdominal pain
⦁ Low grade fever
⦁ Vomiting episodes may repeat with regular spacing of days or weeks
⦁ Lethargy or unresponsivenes
⦁ Dizziness
⦁ Excessive salivation, and/or spitting
⦁ "Perplexing" or unusual behaviours
PLEASE SHARE MY STORY AND HELP RAISE AWARENESS OF CVS.
#CyclicVomitingS
#ChronicIllness #InvisibleIllnes
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